I am a VERY responsible person, and a VERY persistent person. I work HARD. I had work HArd for everything for things that most people take for granted. That is part of the way that my own oppression and domination take place…so excuse me when i chaff at the bit. All this month and from about half of last month I’ve been deconstructing the messages that I’ve been bombarded with all my life which is that I am LAZY.
See the story is BECAUSE of the fact that I have a disability I should be already and willingly and should have long since made peace with the fact that in order for me to achieve, succeed or get to be “normal” or have the things/access and privileges that “regular” “everybody” then I should already know that I HAVE to work harder, I HAVE to be stronger, I have to BE soo much more and hence the super crip, overachieving and most importantly passing disabled me was formed, reinforced and reaffirmed.
remember when I started to actively read and think the “feminist anthologies”: Susan Raffo, Eli Claire and other writers living with a disability that critique the super crip phenomenon but most of it is a simple stop resist and reject the super crip stance. This stance in reality is VERY VERY DEADLY for a person who is not white and middle classed and generally has a safety net of privilege to land on should they choose to reject the super crip phenomenon.
I have worked hard and I have always worked hard all my life. I say this with grave bitterness, most of the people who know me are familiar with this bitterness but it is a good bitterness, it is a good rage. If I didn’t have it, I would be worried because it would mean that somewhere deep inside of me I no longer can gage, I no longer can tell within myself the way that things are and the way that things should be. I would have nothing to look forward. Disabled people and trauma survivors of which I am both have suffered and continue to suffer a lot of hostile and violent STIGMA simply because they are who they are and they have this bitterness and this rage. I am not a friendly person, I am not nice, feel free to call me a wicked person, feel free to even call me a monster.
Anyways, the point of all of this is working hard is tough and it makes me weak, it makes me vulnerable to affection and care received from other people because I feel like they care and I am so deeply affected by a show/gesture of care and affection that might not mean as much to them as much as it meant to me, nor SHOULD IT, if I wasn’t soo tired or weakened or in so much pain in the first place. (it shouldn’t be that way to state the obvious, in a good equal world people wouldn’t say dumb and hurtful toxic destructive garbage meant to humiliate, embarrass and dominate crap like I wish I was disabled so I could get befits or its unfair that disabled people get special advantages that that they then turn around and take advantage of ..there would ALREADY be policies, structural practices and a general cultural understanding that these things are only the beginning in addressing the unequal ground that we exist in, THEY WOULD ALREADY BE IN PLACE< IT WOULD ALREADY BE UNDERSTOOD people would not have to be constructed as lying and cheating even as their labor worth and existence are being exploited for the power and dominance of more powerful others…. Like DUH!!)
it is in explaining this little fact and the share unfairness of the situation usually brings me to tears. Big time. It hurts, it a dagger through my heart and back BECAUSE why? Because it affects literally my quality of life, it affects the kinds of conversations that I can have, my feeling of security with others, my safety, my security, my confidence and assurance in others perception of myself….it breaks my heart when it come from people whom I love and have loved dearly. It seems to make loving, living, sharing with them of any kind almost impossible. I need help in this respect; I need help when it comes to finding ways to build alliances that are honest, respectful, and not harmful in this regard. I’m working through that.
I’m learning to work for myself and to offer myself care because I am realizing that when able bodied people and non trauma survivors offer care/support that they so within an ableist framework given that this is what they operate within on a daily basis. This therefore means that they are operating from an at best, questioned and slightly critiqued place of pity and save the monster or upliftment of the handicapped place where they unspokenly EXPECT you to be grateful or like they’re actually like really and truly saving you when in reality they are being patronizing, condescending, oppressive people only interested in sucking the little passion, resistance, fight you got in you when they insist that you affirm their dominance and power and my dear people that Is when, as in it is in those moments that I hold on tight and hold on to that precious feeling in your gut and NEVER let go. Those are defining moments…those are moments when you find out where and how and why the lines of power and colonization and the way that the colonization takes place. Those are indeed colonizing moments.
Most of the people in my life have tried to tell me that I was lazy, not fully there, not doing something right and generally and there is nothing like self validation, there is nothing like recognizing something and affirming your own power within yourself which is what I have to do and these days even as I work a 9-5 come home and work again, I remind myself that at least I am creating a life where no one else can exploits the fruit of my work especially when they do not even begin to comprehend what it means for me to live my life the way I do, or how much I have to work or how much I have had to learn in order to have things the way that they are.
So yes, I am in the process of working hard but it is because I think that I have little time, now that my body can handle it I have to do and do as much of it as I can and that’s cold comfort in and off itself. So that when the time comes and I’m chilling then I’m chilling.
I was saying before that a person living with a disability I cannot be fucking around talking about how I’m resisting super crip while the able bodied people achieve I think that one can do this with an awareness that we are existing and living within a capitalist, individualist system that working within it actually causes disability as a physical and social phenomenon and makes disabled people work harder by creating a system where their labor is exploited which is by the way what the save the handicapped people end up doing my undermining and devaluing the value and worth and quality of the work that their disabled friend by calling them lazy and irresponsible stuff that is not critically reminiscent of the disabled serial killer monster stereotype, but don’t you dare mention that cos you’d be pushing their guilt buttons which you MUST do to take advantage of them because that’s the only way your disabled self could have succeeded and gotten so far in your life, see cos you really should be in institutional care somewhere (what a mind fuck). Those are my thoughts for now.